I'll preface this by saying that I am giving you all the Readers Digest version about me. Short, sharp and to the point. I think my reason for doing it is twofold.
- So as not to bore you with too many details; and
- Because I have written this stuff countless times before and have learned to condense it well.
So! *deep breath* here are the facts.
I was born with achondroplasia, the most common form of dwarfism. My parents are both average sized. Noticed I used the word "average" sized. Not normal, not tall - average. As with most people like me, there was no history of dwarfism in my family at all. It happened as a random mutation of a gene – so I am a mutant, an X-Man (or woman in this case.) I am the eldest child of my parents. They went on and had two boys and four other girls after me – all average height. No achondroplasia occured after me. It was always going to be that way. None of my siblings were going to carry the gene – you can’t carry the gene unless you are actually born with achondroplasia.
So there you are folks. Genetics 101.
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| My two little brothers and I. The fact that I was older than them but they were taller than me hadn't registered with me at this age. Mum says that it was totally obvious who was the boss! :) |
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| The only thing that disturbs me about this family photo of all of us is the 70's fashion! (taken late 1980) |
I have had a good life – surrounded by love and acceptance by my family, brought up doing everything anyone else did. I went to a regular school, learned to drive, got a job, got married to a man with another form of dwarfism, had babies – just generally had a life. Pretty boring huh? The only difference between me and everyone else is that I am doing everything at a height of just under 4ft. It confuses me that people find this curious, amazing, confusing and, at times hilarious. People can be lovely and then there are the minority that can be downright horrible. Unfortunately sometimes you tend to pay more attention to the ones who bring you down and are horrible to you sometimes. I need to constantly remind myself that there are more good people than bad, more who are friends than enemies, so that I don’t get too despondent and want to hide away in my house away from it all.
I am happy. I am healthy. I jog every morning. I have no medical problems associated with my condition. My happy and healthy upbringing formed the basis of my decision to have children. All of my babies were born via c-section at around 38 weeks gestation due to the fact that I have a very small pelvis. (although you wouldn't think so!) I had healthy, trouble-free pregnancies. My children all have dwarfism as well. I wish I could report that they haven't had any issues asssociated with their conditions, but this is not so. We know the Children's Hospital intimately. I have given my children over to the hands of surgeons and anaesthetists many, many times. It's not over yet.
I am immensely proud of my children. They have such courage, such gentle, warm, tender hearts. All of them have an independent outlook and are making their own way through life. I love them more than my own breath.
I am also the proud aunty of 12 neices and nephews. They and I have had this “thing” about recording the day we discover they have grown taller than me. It's a momentus day. Earlier this year the youngest one grew taller than me and we photographed it for posterity.
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| Toots - aged 5 - and Aunty Leisa. A proud moment! |
So there you are. That's me. I'm out there now.
I love questions. I really do. I am a firm believer in the idea that there is no such thing as a stupid question. If you have a question, please ask. Anything. I’m happy to answer.







